The IMPACT Survey is an international research project exploring the real impact OI has on people’s lives. We still owe the international OI-community a big THANK YOU for providing us with responses covering experiences of almost 3000 people with OI and their family members worldwide!
The survey was run by Samantha Prince and Maria Rapoport (in the photo) from the company Wickenstones – an experienced scientific agency who, OIFE, OIF and Mereo Biopharma have engaged to do the work. Five articles will be written with the support of Wickenstones and the first one about the initial literature search and scoping review has already been published in Orphanet journal.
Read more on the OIFE webpage:
https://lnkd.in/dDsEmW6h
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- Evidence generation